WHO WE ARE
Your support is important to our work at Aarav's Time to Shine. There are many ways you can contribute towards our causes, and every little bit that you commit goes a long way in helping us fulfill our mission. Learn more about how you can get involved and take advantage of the opportunity to do some good.
To bring awareness and raise funds to assist the Cystinosis Research Foundation’s search for a cure.
To see a world where cystinosis can only be found in medical history books.
Working Towards a Better Tomorrow
Cystinosis is a rare and incurable disease that affects 2,000 patients around the world.
Cystinosis is a disease characterized by the accumulation of the amino acid cystine (a building block of proteins) within cells but has no transporter out. Because of this defect excess cystine damages cells and often forms crystals that can build up and cause organ & tissue damage leading to early cell death.
Cystinosis slowly destroys the organs in the body including the kidneys, liver, eyes, muscles and the brain.